What To Do When You And Your Baby Are Sick

This is one of those posts I was kind of hoping I wouldn’t have to write.  But, alas, my little one got the flu and a bonus ear infection a while back and then just kept getting sinus problems coupled with (BONUS!) teething.  For all the fellow autoimmune disorder moms out there, you know what that means, right?  Yup.  It means you’re getting sick, too.  Over the course of the past couple months, I also got the bonus ear infection (full with perforated eardrum) plus a super sized sinus infection and limited edition stomach flu!  So here are my first-hand tips on what to do when both you and your baby are sick:

1. SANITIZE ALL THE THINGS

Not even kidding with this one.  My husband usually teases me because of my OCD and proclivity for decontaminating things, but this time of year no one is joking about the Purell!  Your little one, no matter the age, is carrying a copious amount of germs.  Whether your baby is sneezing in your face, putting everything in his mouth, or touching everything with sticky hands, he or she is spreading germs.  Your first line of defense?  Sanitize things and do it often.  Wipe down hard surfaces and plastic toys, wash bedding and soft toys, and pay special attention to communal areas (like the living room or bedroom) and shared objects (like remotes or pillows).  So even if you are already sick, this will help limit the length of your sicky days and will hopefully prevent it from being reintroduced into your family.

Dean knows what’s up

2. Limit Time in “Danger Zones”

Whether you’re trying to prevent getting sick or you already are, it’s a good idea to limit your baby’s and your exposure to germy hotbeds.  Now may be the time to cancel play dates, say no to Chuck E Cheese, and avoid busy malls.  This goes both ways, too.  Not only are you trying to reduce your chances of getting sick, but you also don’t want to be “that mom.”  You know the mom I’m talking about.  It’s the mom who brings her clearly sick child to daycare or a group play date and seems oblivious to the fact that he’s snotting all over the toys and is coughing directly into your child’s mouth.  So yeah, don’t be “that mom.”  And limit time in potential danger zones so you don’t have to run into “that mom.”

You know the type. Won’t even turn away to sneeze

3. Rest, rest, and more rest

Easier said than done, right?  While I’m inclined to agree, there is one exception to the rule.  You can’t properly care for your sick child if you are running on fumes.  Take it back to the newborn days when you repeated this mantra like a bloodshot-eyed zombie “you sleep when the baby sleeps.”  If your baby is sick, hopefully he or she will actually be taking more naps than usual since they’re feeling pretty rundown themselves.  So forget dishes and errands.  Seize every opportunity you can to nap and take it easy.

God bless this girl for having the courage to do what we all wish we could

4. Ask for (and accept) help

Thankfully I live within ten minutes of both my mother and mother-in-law.  And thankfully we all got sick when people weren’t terribly busy.  So thankfully (again) I had no shortage of help when my baby and I needed it.  I’ve said it before and I’ll say it again, don’t mistake pride for courage and remember it’s not a Mompetition (remember that one?).  No one is going to judge you for letting your mom watch the baby while you get some shuteye or if your mother-in-law graciously brings over dinner.  And if anyone does judge you, they are either jealous or… well no they’re probably just jealous and you should feel bad for them.

Let yourself feel a little braggy for a minute

How to Survive Baby’s First Holiday

The holiday season is upon us once again!  This time last year I was on bed rest, beyond ready for the baby to come, and feeling like a beached whale.  This year, I’m always on my feet chasing my mini monster, beyond ready for a nap, and… actually I still kind of feel like a beached whale some days.  I guess some things don’t change *wink wink*  Another thing that hasn’t changed is the high level of stress that the holidays can bring.  So here are some tips to help you survive your baby’s first holiday season!

Plan Ahead

Nothing is worse than that ‘trying to keep my head above water’ feeling when it comes to getting overwhelmed by the holidays.  Okay, well maybe a few things are worse than that, like explosive diarrhea in a bathroom with no air conditioning or driving on I-4.  But holiday stress is still pretty gnarly.  One way to try and make the season more manageable?  Plan ahead.  Things become a lot less intimidating once you start breaking them down.

This cool cat is taking it one step at a time

If the thought of driving 3 hours with your baby to go see relatives is keeping you up at night, try envisioning the actual situation in your head.  For instance, if you know you will be going somewhere your baby is unfamiliar with, bring a blanket or toy from home to make them feel comforted and safe.  Thinking ahead makes things less scary and helps you figure out what you need to do to be prepared!  Speaking of prepared…

Extra Clothes (for mom AND baby)

You can never have too many back-up outfits when you’re getting ready to take your baby on a trip.  Whether it’s a quick visit with Grandma or an all-day event, always pack extra clothes!  My son has acid reflux issues so he spits up frequently and thus goes through more wardrobe changes than Lady Gaga.  But it wasn’t until one day early on, when I was still a wide-eyed mom full of optimism, that he puked all down the front of my shirt (and missed himself, of course) and things changed.

I call it “The Embarrassment Sweats”

 

I had tons of onesies for him in the bag, but nothing for me.  A lesson I only needed to learn once!  So save yourself the embarrassment and subsequent awkward explanations – “Oh this?  Haha yeah, it’s pureed squash and puke. Hashtag ‘mom life,’ riiiight?? Haha okay bye! – and pack a back-up shirt for you and your partner.

Don’t Underestimate People

If you know me or have read any of my previous posts, then you know I’m inclined to convince myself that the worst case scenario will happen.  I also carry a nice British-sized dose of guilt and awkwardness around.  So I tend to get nervous about how people will react when something bad (inevitably) happens.  What if my baby spits up on my in-law’s rug?  What if I have to say no to an event invite altogether?  What if we have to leave a party early because my son is reaching a nuclear reactor level meltdown?

It’s about to get real

Having actually experienced all of these things, I can tell you firsthand the surprising outcome: everyone was actually super nice and understanding about the situation!  Unless someone is just a major Grinch (get it? Holiday humor!), people are actually fairly accommodating and sympathetic to life’s little mishaps especially when it concerns your health and/or babies. So breathe a sigh of relief and don’t underestimate the kindness of people.

Smile… a lot

This one may sound a little cheesy, but hear me out.  As a mom with multiple chronic illnesses, I’m often in some degree of pain or discomfort.  Don’t go pulling out the violin, I’m just stating fact here and I’m sure all you other moms with similar issues can appreciate my candor when it comes to health.  And since I’m no stranger to feeling uncomfortable, I’ve mastered my “serene” face.  However, upon looking at some photos a few weeks ago, I noticed just how calculated my “serene” face looked.  It was a cross between a mannequin and a the snob who just has to mention that she knows those are last year’s  shoes you’re wearing.

In my head, I thought I looked totally dignified

Basically, my face didn’t display the kind of mirth and joy one expects to see in family holiday photos.  You may think this sounds a bit superficial, but trust me.  Any other time of year I would say, “Hey, I’m gonna wear sweatpants, I don’t care.  Deal with it, blah blah feminism blah blah.”  But since this is my baby’s first holiday season, I don’t want the pictures of our new little family to remind me of my disease every time I look back at them.  I want the photos to capture all the wonderful emotions my heart feels in spite of my health.  So if that means having to summon the majestic power of a thousand bald eagles to keep a smile on my face for a few minutes, so be it.

Make time and BREATHE

If you remember only one thing from this post, let it be this.  Take a moment during this busy season and just breathe.  Everything will be okay and the world will keep on spinning even if things don’t turn out quite the way you had pictured.  If you find yourself getting overwhelmed, remember that it’s all temporary and things will be calmed down and back to normal soon enough.  Try not to let the little things get you down.

Rise above it!

And most importantly, take time to just celebrate your wonderful baby and allow yourself to forget about all the hullabaloo for a little bit.  My partner and I always make a point to snag a moment where it’s just us and our baby.  Granted your baby will have no idea what’s going on, but it can be special bonding experience for you and your partner to revel in the awesomeness of parenthood.  Treasure this first holiday season with your little one because it only happens once!

Happy Christmas, Kwanzaa, Hanukkah, Bodhi Day, Pancha Ganapati, Soyal, Yaldā, Yule, and Festivus to you all!!!

(Sorry if I forgot anyone!)

Why It’s Okay to Complain

Maybe it’s because I’ve lived with health issues my whole life. Maybe it’s because I’m a new mom. Maybe it’s just me. Or maybe it’s not. But I’ve long felt the necessity to stay strong and never complain. Perhaps I felt as if I were betraying all the strong, fierce feminists that came before me. I’ve always thought that if I complained, asked for help, or took a break that it somehow meant I was giving in and letting my struggles get the best of me. Thankfully, I’m here to tell you that that’s just not true. It really is okay to complain sometimes.

It wasn’t easy to allow myself the freedom to complain. Honestly, it still isn’t easy even now. I still hesitate sometimes when asking for help. And when I do ask for help, I’m convinced that the other person is secretly mad that I bothered them. Again, this could just be me dealing with my own issues, but from the other moms and women with chronic illnesses I’ve talked to, it doesn’t seem like I’m the only one. So here are five reasons why it’s not only okay to complain, but it may just be the best thing you could do for yourself.

5. It Puts Your Pain into Words

So often, when I’m having a health issue or beyond exhausted, pain just becomes a part of this unspoken routine. Even before I had a child, I still couldn’t just take a day off whenever I was in pain or sick. If that was the case, I would have been home more days than I worked. So, you learn to just “deal.” But I did eventually get to my breaking point, as we all do. So I complained. And it was awesome! I got to put into words exactly what I was feeling which did two things: 1) it helped me articulate just how debilitating my health issues can be, emotionally and physically, and 2) it gave everyone around me a better picture of what I was going through and how to help. Contrary to popular belief, glaring at someone does not actually tell them what’s wrong.

4. Better Out Than In!

That saying has stuck around for a reason. It really is better to let it out than to keep it all in. When you keep things in – health issues, relationship problems, anger, sadness, etc. – it becomes toxic. And what’s even scarier is, if you hold on to the problem long enough, it becomes a part of you. One day, I caught myself in the mirror and realized I looked miserable. Not sad, not unhappy, not even angry, just plain miserable. I was holding in all this frustration that it was physically manifesting on my face and it wasn’t cute. So I wrote down a list of all the things that were causing me stress or pain. Then I showed it to my husband when he got home. The conversation that followed wasn’t exactly cute either, but I caught myself smiling for no reason the next day 🙂

3. Perspective

Not all the things I put on that list were really stress-worthy. Sure, some issues on the list were serious (like finances and health), but some were downright silly. I wrote “all out of Baked Lays.” It’s funny now, but at the time I’m sure it was a very legitimate thing to be stressed out about in my life. But reading it on that list not only let me see how small and easily fixable some of my problems were, but it also showed me (and my partner) that if you let things build up, it only takes one little thing to push it over the tipping point. That saying “the straw that broke the camel’s back” definitely fits here. And not to worry, I finally got my Baked Lays and all was right in the world again.

2. Healthy Alternative

I’m not suggesting everyone who bottles up their issues immediately becomes destructive, but I have seen firsthand the negative consequences that can come of it. One of the most important things I should point out first, is that this can happen to women and men. I’ve seen both mothers and fathers who never complain, yet they are visibly unhappy and some are even resentful or bitter. I’ve also seen pain eat away at someone until they’re just a shell of who they used to be. Partly because of what I had seen, I knew it was important to me, my partner, and my son that I never let myself become overwhelmed under the weight of chronic illness and motherhood. So if a little venting from time to time prevents you from a life of resentment or unhappiness, then I say it’s worth it.

1. Forming Bonds Stronger than Denture Cream

Believe it or not, giving myself permission to complain didn’t help just me. It was like a magic wand had been waved! Out of nowhere, all these friends and mothers were released from their guilt-ridden spell of silence. Suddenly I was getting texts and calls and Facebook comments and messages from both friends I’d known forever and people I’d just met saying things like, “Oh my God! I thought I was the only one!” or “Finally, someone is talking about it!” I began to forge new friendships and strengthen existing ones by simply “complaining” on social media about how real the struggle of balancing motherhood with chronic illness can be. So if you haven’t already, be the first person to break the “Guilt and Silence Spell” and enjoy the deep sense of camaraderie that you will find among friends new and old.

A Day in the Life 2.0

Once before, for funsies, I did a little glimpse into what happens in a given day of a high-risk pregnant woman.  Since everyone seemed to get a kick out of it, here’s a day in the life of a new mom with a chronic illness in 10 gifs!

1. Wake Up via Crying Baby

NOTE: I would never say this, I just think it… very loudly

2. Calm Down Baby

Much like trying to pet a wild animal, attempting to cuddle away the cries usually ends in scratches and more crying

3. Prepare Bottle

Trying to function early in the morning whilst holding a baby in one arm is akin to trying to walk in a straight line after one too many lagers

4. Burp Baby –> Take Cover –> Change Baby

This one is pretty self explanatory

5. Attempt to Have Educational Play Time

Oh, Max, this is just the beginning of how uncool you’ll think I am

6. Try to Sneak Out to Pee/Eat/etc. While Baby Plays

If only I was this stealth

7. Don’t Let Baby Kill Himself

So much energy, so little coordination

Repeat Steps 2 – 7 ’til Bedtime

The days begin to blend together

8. Do Any/Everything to Get Baby to Sleep

Praying is a viable option, right?

9. Wonder if Baby is Really Asleep

Babies are sneaky little tricksters, like mini-Lokis

10. Rejoice! Baby is Asleep!

Be happy (even if it only lasts for a few hours), because you’ve earned it!

How Chronic Illness Prepared Me For Motherhood

Math and I aren’t really best friends.  In fact, we’re barely on speaking terms.  There is one thing that Math and I have in common: a love of Venn Diagrams.  Get it?  “Have in common” haha, oh man, puns.  Point being, a light bulb went off for me recently when I was thinking about how my chronic illnesses interact with my new-found motherhood.  I started thinking about what the two things have in common and how having a chronic illness got me ready for the challenges of motherhood.

Thank you, MS Paint

5. Just Dealing with It

Not all of us are lucky enough to live life without worrying about finances.  For me, I worked two jobs to put myself through college.  Looking back, I have no idea how I managed to do all of it.  Actually, I have no idea how I manage to accomplish a lot of things.  But, just like many people with a chronic illness, when I am told I can’t do something, I am just that much more determined to do it.  So you learn to deal with it.  Have to pull an all-nighter to cram for finals but you’re in the middle of a flare-up?  Tough cookies.  There are just some things in life that you really can’t bail out on no matter how much your chronic illness sucks.

If only I could fix my scoliosis like this

And learning to just deal with the suckiness of it all turned out to build up this thing I call a “Stamina Callus.”  Just like you need calluses to be an awesome guitarist (I think?  I don’t know I’m not musical), you need to have a certain stamina level to survive motherhood.  So when the baby needs to be fed and I’ve only had 2.7 seconds of sleep, I can just do it.  Thanks Stamina Callus!

4. Compensating

Compensating, to the average person, means to counter-balance something.  To a person with a connective tissue disorder, it means constantly shifting your weight or changing your stance in order to prevent or manage a dislocated joint.  I was diagnosed with Ehlers-Danlos when I was a teenager, but I had been living with it my whole life, obviously.  Even from a young age, I remember wondering how my T-Ball teammates could just jump off the bench and run on the field.  Whereas if I had done that, my hip probably would have given out and I’d just wipeout before even exiting the dugout.

So funny, but so painfully accurate

So bending over to pick up a fifteen pound infant a gazillion times a day really didn’t seem so bad after a lifetime of faceplants.  I already had experience balancing, being uncomfortable, and knowing when to ask for help to avoid a really bad spill.  And trust me, once you have such precious cargo in your arms, you become even more aware of the dangerous, slippery world around you.

3. Sleeeeeep

Clearly nothing compares to the lack of sleep you experience once you become a mother.  But I would bet good money (like four bucks, maybe?) that the fatigue associated with Lupus and other autoimmune disorders could be a close second.  Lupus fatigue also comes with a pesky side of anxiety.  It’s like you can feel it coming on, yet you know you have little to no control over it.  Imagine you are driving a semi-truck on an icy road on the side of a mountain and right as you are about to go around a scary curve, this blindfold begins to descend over your eyes and you are defenseless.

Supernatural GIFs are always appropriate

The fatigue/anxiety combo actually was a pretty accurate test run for being a new mom.  In those first weeks, you’re desperately exhausted, yet every time your head hits the pillow, you immediately panic thinking the baby needs you.  I’m not gonna lie.  That panic is still with me almost eight months later.  I still hear “phantom cries” and get up to check on the baby “just one more time.”

2. Must… Remember…To…?

Have you ever walked into a room and completely forgotten why?  Well, some people with chronic illness experience these “mental fog” states on a fairly regular basis.  With the amount of times I’ve searched for my keys whilst holding them in my hand, you would think I was driving to get the early bird special with my AARP discount.  Not only do we experience lapses in both short and long-term memory, but we can be absent-minded as well – and not in that adorably awkward, professor way.

Totally believable

Long before pregnancy or motherhood had me putting dishes in the fridge, I was bringing the remote into the bathroom.  That makes for a really weird sentence, but you get the point.  I guess I just wasn’t as rattled or shocked by memory lapses since that had become the norm long ago.

1. Time for an Epiphany

Once, when I was walking across the stage at my hard-earned college graduation, I suspected it.  Then, again, after fighting through red tape and regaining my license after seizures, I wondered about it again.  But it wasn’t until I held my child in my arms did I realize my suspicions were true: “I AM A FREAKING SUPERHERO!”  And guess what?  You are, too!  Women living with chronic illness and balancing motherhood are amazing.  We are warriors, we produce life, we rise from the ashes again and again.  Can you tell me how that’s not the making of a superhero?  Exactly.  So go find your cape because it’s about time you accepted the truth that you are an amazing forth with which to be reckoned!!!

Whoooo! Go girl!

Why I’m Not A Mom (and neither are you)

No, no, no.  Calm down.  No one needs to call Social Services or anything, my son is very well fed (as is evidenced by his Michelin man legs).  I’m just on my  soapbox  again.  I don’t like the label “mom,” never have.  Mom is a palindrome; it’s written the same forwards and backwards.  I also have an irrational fear of palindromes, in case you didn’t know.  The “M”s on either side of the “O” are like little bookends.  They’re little, mean bookends confining the “O” in the middle.  The word is stuck as it is and can be nothing else.  Yes, I’m writing this on very little sleep.  So allow me to explain, since my previous sentences sound like the ravings of a madwoman.

Ooooh watch out!

Seemingly, when you become a mother and other people begin to refer to you as a “mom,” the world around you gets a little smaller.  You’re now “just a mom.”  The media isn’t interested in you as a “woman” anymore.  Magazine articles either cater to alluring, interesting young women or to “moms” and their quilting and hors d’oeuvre making.  You find yourself wondering if you should just resign to wearing sweats and always smelling just a bit like baby spit up.  The suggested ads in your Facebook are suddenly about minivans, artichoke dip recipes, and losing weight.

Yes, FB, this is totally accurate

What happened to everything else I am?  I love to travel, discuss religion and politics, sketch, and watch an ungodly amount of BBC America.  I’m still an activist for animal rights, environmental issues, gay rights, and raise awareness for invisible illnesses.  I still shop at H&M, Urban Decay, and (embarrassing as it may be) Forever 21.  Why does becoming a “mom” mean to many that I am no longer that person to so many people I’ve encountered?

I FINALLY GET TO USE THIS GIF!

I am so proud to be a mother and so humbly grateful to have received a gift that many women desperately want.  Through all the ups and downs, I would still do it again for my sweet son.  I am responsible for him and to him now.  But I’m also obligated to show him what a strong woman looks like.  What disservice would I be doing to him if I sent the message that once a woman has a child she ceases to have any other identity except that of a mother?  Or what would it imply about women who are unable or choose not to have children?  Are they less of a woman or somehow less caring?   How would he then treat women?  I hope to show him that women can be nurturing yet independent, kind yet bold, and yes girls can like mud and science and Tonka trucks, too.  I hope he will in turn exhibit respect and empathy towards others and strive to be aware of his impact as well.

because babies holding hands is adorable

So that’s why I’m not a mom and neither are you.  We’re mothers, partners, artists, goofballs, chefs, secret-keepers, dancers, nerds, and everything in between.  We owe it to ourselves and our children to be a full person, flaws and all.  Children learn so much about the world by watching what we do, how we act, what we say.  Show them, tell them that you are, not were, an artist or a nerd or a thrill-seeker or a musician.  Let them see all that you are so that they might know who they can be.

They’ll grow into those shoes quickly, trust me

What The First Week Is Like With A Newborn

Even though it was almost seven months ago, I can vividly remember what the first week was like with our new baby.  It was exciting, scary, emotional, and – oh yeah – exhausting!  I’m sure you probably could have guessed that having a newborn while living with a chronic illness wouldn’t be easy, but there’s something different about once you’re actually living it.

Too bad this isn’t a real card

This isn’t meant to scare you, of course.  I just want to give you a little heads up (no pun intended) on what your first week might be like.  Here are five things you can expect:

5. No Wonder Sleep Deprivation is Used as a Torture Method

Apparently your newborn has not yet heard of the Geneva Conventions.  If he or she had, then they’d know that sleep deprivation is listed as one of the forbidden methods of torture.  Yes, you read that right, torture.  And that’s just what it can feel like in the first few weeks when you are still adjusting.  Sleep deprivation can cause memory lapses, hallucination, confusion, irritability, headaches, and an overall case of the yuckies (not a scientific term).  So it’s no wonder that getting up to feed your baby every 2 hours, be coordinated enough to change diapers, and calmly console your baby takes a toll on your mind and body.

 

No joke I could fall asleep in 5 seconds

4. Sometimes Babies Just Cry

There really is no nice or easy way to say it, but there will be times that your baby just cries.  You go through the checklist in your head – Okay, the baby isn’t hungry, wet, too cold or too hot, doesn’t have a fever  – but still your little one is crying.  Like any new parent, I probably made unnecessary calls to the pediatrician wondering if there was something wrong that was making my baby cry.  After all, newborns can’t talk yet, so how would I know if my baby’s appendix was bursting or something?!  (Which is actually a real concern I had)  And just like every nurse, mother, and grandmother told me, sometimes they just cry.  Don’t ignore your instincts, though.  If you really think something is wrong, then please call your doctor.  But do know, that even if you’ve tried everything and your baby is still crying, it’s okay.

Foolproof method

3. Now is The Time to be Selfish

As I’ve said in posts before, my tendency to be stubborn and even a tad prideful when it comes to dealing with Lupus and a connective tissue disorder has never had a good outcome.  Sometimes if I bend over, my hip dislocates.  Sometimes during a flare-up, my joints are so stiff it hurts to sit in one position for too long.  And as I’ve also said in previous posts, once a baby enters the picture, don’t turn down help.  So with a new baby in the picture, now more than ever is the time to accept any and every offer you get.  Whether someone offers to come over and watch the baby for an hour so you can sleep or someone wants to bring you dinner, SAY YES!  You won’t regret it.

Why, yes, I will take that sandwich

2. Play Nice

With hormones and tensions running high, your filter may be a little more lax than usual.  You might find yourself snapping and speaking more harshly than usual.  And the little things that were once just mildly irritating are now cause for WWIII.  If you have a partner, the biggest piece of advice I can give you is to try and speak sweetly to them during this very crazy time.  Studies show that the first year of having baby is one of the toughest for married couples.  So while it’s completely understandable to worry about finances or to be grumpy about whose turn it is to change the diaper, remember that a little bit of kindness can go a long way.

Let it out, honey

1. Routine is Your Friend

All the adorable Pinterest boards and all the articles with perfectly-styled nurseries left out one little detail: it’s just not realistic.  When it’s two in the morning and you need to change and feed the baby, you won’t be thinking about how cute your changing station set-up is.  In reality, the most convenient set up in the first few weeks for me was having the bassinet in the living room where I could crash on the couch.  The living room was right next to the kitchen, where I set up bottles with pre-measured water in them.  It may not seem classy, but having some semblance of a routine – something easy that didn’t require much effort – made a world of difference for me and my sanity.  I’m not saying my way is right, but just find something that works for you.  You don’t need to make things harder and you certainly don’t need to worry about appearances.  Do whatever fits you and your baby’s needs and I promise it will make things just a little smoother.  And if all else fails, just relax and think of this adorable kitten massaging a little pug dog.

The Dirty Truth About Breastfeeding

Breastfeeding – whether you’re a fan or not, one thing is for sure: everyone seems to be talking about it. For many mothers around the globe, this is a wonderful celebration of the emotional and physical bond shared with their child. Breastfeeding pride is everywhere you look these days. From Instagram protests to celebrity magazine spreads, this topic has caught some media attention, as well. Olivia Wilde’s photo shoot in a diner seems appropriate since that’s the purpose of breastfeeding: nourishment.

via Glamour

But here’s the dirty truth about breastfeeding: not all women are able to do it. I’m sure breastfeeding is an amazing experience between a mother and her baby. And I think I may have even had a small glimpse of it. But that’s all it was for me, a brief glimpse. I cradled my son, tears streaming down my face, asking the heavens for a miracle while he cried, hungry and unable to receive any life-sustaining milk from the very body that unceasingly nourished him for nine months.

But the milk never came.

Don’t get me wrong, I am in total support of breastfeeding and completely aware of all the benefits. I could even cite you ten statistics off the top of my head about how awesome breastfeeding is. I am full of this knowledge for two very important reasons: first from the overwhelming amount of pressure and opinions from doctors, nurses, lactation consultants, other moms, friends, family, strangers, etc., and then from the debilitating guilt that followed and had me desperately searching the internet for answers.

Bottom line, I cannot breastfeed. My heart breaks a little more every time I admit it out loud. But my shame diminishes just a little, too. “You are not a whole woman; you’re not even a real mother.” Those thoughts still poke their way into my mind every so often and it’s difficult to ignore when tags like #FreeTheNipple started trending on Twitter and famous celebs started posting breastfeeding pictures on social media. All this pride, all this “I am woman, hear me roar” type empowerment can be both intoxicating and poisonous at the same time. I could scroll through beautiful photos of women breastfeeding their children for hours, envying them and hating myself at the same time.

Dried up desert lake beds aka my mammary glands

If I’ve said it once, I’ll say it again: you are not in control of your body when you have a chronic illness. I know this, but I am stubborn. And bitter. And I think all of us with a chronic illness are better off for being so insanely optimistic even if we never get the results we want. I wanted so badly to breastfeed. I wanted it so much it made my insides hurt (or maybe that was just the c-section). Three intimidating lactation consultants, some very caring friends, a connective tissue disorder, multiple breakdowns, a gazillion hippy-dippy remedies, and one empathetic mother later, I came to the conclusion it just wasn’t in the cards.

Shut up, tarot card

The moment I finally resigned myself to my milk-less fate, I felt like an udder failure. Get the pun?  Eh, this blog post needed a lame joke, but I digress. It took my very kind OB-GYN and my own mother to pull me out of my pit of despair. My doctor told me that many women are unable to breastfeed and that it’s common for women with Ehlers-Danlos Syndrome to have issues with breastfeeding. The connective tissue disorder can make it difficult, if not impossible, for the mammary glands (which are made up of connective tissue) to produce and maintain a milk supply. So that helped on the factual, medical side, but my hormonal, emotional side still needed consoling.* Thankfully my mother was there for that. Though her story is not mine to tell, I can say that I trust her completely when she said there was nothing more I could have done and it makes me no less of a “real” mother for it. So let me tell you, if you haven’t been told already, you are a real woman, a true mother. Being able or unable to breastfeed does not make you any more or any less of a mother. Shame on anyone who would try to tell you otherwise. While I still openly support breastfeeding, I wish there was someone like me on the cover of a magazine. I wish I could see a woman – flawed, chronically ill, unable to breastfeed, tired, and with loose skin where a tight stomach once was – in the spotlight, praised by the media and told how beautiful she is. Until that happens, you have me, telling you the dirty truth and reminding you that you are beautiful. 

 

*If you feel you are unable to cope or are having serious concerns after having your baby, you may have postpartum depression. Please don’t hesitate to reach out for help. Click this link for resources and support.

Goodbye / Hello – A Tummy Timeline

Warning:  This post contains a large dose of whining, a pinch of self-loathing, and a heaping spoonful of hormones.  Read at your own risk.  

Today’s post is in honor of National Love Your Belly Day! Actually I have no idea if that’s a real “day” or not, but it sounded good, right?  Fake day aside, I was feeling a bit down in the dumps about my lovely lady lump-iness (aka my post-baby body) when I went swimsuit shopping recently. You see, having a chronic illness had already prepared me for what it feels like to be a captive in my own body.  When you live with an illness you feel neither in control nor certain. Yet one thing was always for sure, though: when I went shopping, I never had to try anything on. I was always a small.  Pregnancy changed that.

Not that I would ever be bold enough to step outside of the dressing room

But let’s take it back a little. Because you didn’t just wake up with this body one day. It took nine months to expand and seemingly a lifetime to learn how to deal with it after. Remember a time, before the embarrassing dressing room meltdowns, to the time right when your body was beginning to change? I call it the ‘it’s not a food baby’ stage. This is probably just me, but I found myself to be incredibly weirded out by my no-longer flat stomach. I was so unfamiliar with this that I felt the desperate need to constantly tell people that it was a human baby, not a food baby. People would laugh it off or say I was silly, but I saw their judgmental eyes looking at my poochy tummy.

The subtle art of the “side eye”

Then FINALLY my stomach went from being a behind-your-back conversation starter (is she pregnant?) to being a legitimate baby bump! It was just so cute and I loved showing it off all the time. “Oh this?  Yeah, it’s my super adorable baby bump. No big deal.” And as my baby bump grew, so did my confidence. Aside from the unending nausea and chronic aches and pains, there were distinct moments of that pregnancy glow I’d heard so much about!  Or maybe I was just shiny and sweaty from all that puking. But still! This was a good time for my baby bump and me!

YAAAASSS

Just as I started to hit my peak of awesomeness, a beached whale began replacing me in the mirror. My bump wasn’t a bump anymore; it was a mountain. And then there were all the lovely things that came with my growing stomach: swollen ankles, puffy feet, and cottage cheese (aka cellulite) started showing up in unexpected places. I even swore my armpits got fatter.  I have no scientific proof of this, but since it was the one place I could still shave without pulling a muscle, I became quite familiar with it. And let me just say, the shaves got trickier because my arm”pits” were more like arm”lumpy-waterbeds.” Maybe that was TMI, but you can’t honestly tell me that as you entered those final weeks of pregnancy you didn’t become crazy analytical of your body. With it being a high risk pregnancy, I was practically helping the doctor by being so focused on my ever-changing shape – even if it meant I was constantly breaking myself down in the process.

“Mirror Meltdown Amnesia” is quite normal

I remember thinking to myself that things would start to go back to “normal” once the baby was born. I’d be able to sleep on my stomach again (ha, sleep, how naive I was) and wear things besides flowing dresses and stretchy leggings. I also remember looking down immediately after being cleared to leave recovery, seeing a mushy blob of a stomach, and crying. Logically I knew that my stomach wasn’t going to be firm and flat. Reason told me that no one would judge me for still wearing maternity pants. But logic and reason mean nothing to the hormonal brain of a woman with low self-esteem. Everyone even told me that I looked good for just having had a baby. They’re just being polite, I told myself. Only I knew the real truth. Only I knew what my stomach really felt like. My body was “home” and my stomach was an uninvited stranger. How was I back to my pre-pregnancy weight, yet the muscles felt like they had been spread apart? My skin now felt uncomfortably soft and malleable.

Pity Town population: me

Want to know the shocking twist ending to this blog post?  I’m not going to say that one day I woke up and there were rainbows and sunshine everywhere. I won’t say that I walked out of the store with a brand new, super cute bikini. I won’t lie to you or myself and say I am in love with and proud of my body. It’s a work in progress. I remind myself that my body, my “home,” also became the nurturing home to my son. I also remind myself that things could have been so much worse during the pregnancy and even afterwards. I feel shame, sometimes, for being so superficial. Yet I feel comforted when I open up, like I am now, and find that other mothers – women I deemed flawless – have the same struggles. So let’s get back out on the beach and start taking full-length selfies again. We should share our battle scars, talk about the Play-Doh tummies we have, and make a safe neighborhood for our “homes.”

10 Things No One Tells You About C-Sections

Ah, the c-section. Whether it’s the iconic film scene of an alien bursting out of some poor chap’s torso or a picture of medieval torture in a history book, the images that come to mind when discussing c-sections are not usually happy ones. Let’s be honest: you’re getting major surgery, taking a tiny human out of a bigger human, and are (most likely) going to be awake for it all. So if anyone tries to dismiss your right to be a little antsy, well I won’t say what to do for legal reasons, but you get the idea. This isn’t meant to scare you, of course. But I always thought that the unknown was the scariest thing. At least if someone had told me what was going to happen during the c-section, I’d know what to expect. So that’s what I’m going to do for you. Here are all the gross, scary, awkward things that will happen before, during, and immediately after your c-section!

 

10. Paperwork & Red Tape

Even if you thought you were super smart and preregistered with your hospital prior to giving birth, there will still be paperwork to fill out and red tape to deal with for a solid twenty minutes. We arrived nice and early to our scheduled c-section, yet when we checked in at the desk (after my impromptu puke session in the parking lot bushes), they didn’t have my name right and had me listed with a different OBGYN. But we perma-sickies are used to knowing more than the hospital staff, aren’t we?

You better listen when I’m talking to you

9. You Will be All Sorts of Exposed

I knew my c-section wasn’t exactly going to be a fun getaway to Club Med (that’s still a thing, right?), but I didn’t expect to feel so much like a patient and not a person. That’s no reflection on the staff, it’s just the nature of the beast. After waiting for what seemed like an eternity in the lobby, my husband and I were taken back to our room where I was told to change. No undies or socks or jewelry, just a gown and a a gross hair net. Then a nurse came in and shaved my lady area and acted like it was a totally normal thing to do. This was my introduction to how matter of fact the staff would be about all the private and embarrassing aspects of the ordeal. In some ways it was reassuring, but at the end of the day it’s still very awkward when someone is silently shaving you.

Do I make eye contact? Or is that rude?

8. You Will be Alone… a lot

After the grooming session was over, I was told my husband would have to leave and no one would be allowed back in until the surgery was about to begin. Suddenly I was alone, just waiting for a nurse to come in, and full of time to daydream about all the things that could go wrong. Even after the pre-op stuff started, it’s still just you and a handful of people.  Technically they had more people on staff than usual as a precaution for my high-risk pregnancy risks, but without a loved one there you still feel very alone… and nervous.

becoolbecoolbecoolbecoolbecool

7. Yak City, Sick, Yak Yak City

Okay, my not-so clever spin on a line from a rap song may not be funny. But you know what is funny? Telling the nurse like nine hundred times that you’re GOING to puke, have them nod but do nothing, and then letting a glorious waterfall of vomit wash over them. It didn’t feel great, but a small part of me thought “maybe next time you’ll listen to me when I say I’m about to upchuck.”

Deal with it

The actual point of this entry is to warn you that you will definitely puke at some point. It may be when they’re poking or prodding or it may be when your internal organs suddenly shift as they finagle a human out of you. Which brings me to my next point…

6. Lines and Wires and Garishness, Oh My!

Second time in a row I’ve tried to be punny, but whatever, it’s who I am! Aaanyways, no one really told me the frequency with which people would simultaneously be both in and making holes in my body. First there was the three-attempt IV in my arm (EDS makes for lousy veins), then there was the two-attempt spinal block (scoliosis doesn’t help much), and then there’s the fact that someone has their hands INSIDE of you. It’s like the dentist, “You won’t feel pain, just pressure.” Yeah, right. I didn’t feel the scalpel but it felt like someone was sitting on my chest AND pushing my stomach and lungs up into my throat.

Yup, pretty much

5. So… c-c-cold… might… die

Another one I wasn’t warned about, surprise! Not only will you be freezing due to lack of clothing, but they keep the operating room super sterile and apparently that is synonymous with ARCTIC. Oh, and the spinal block. Unlike a vaginal birth, you have no choice about whether or not to use some kind of anesthesia. And spinal blocks give you this horrible sensation of internal cold and uncontrollable trembling. Super fun symptoms to have when you’re puking while horizontal. But the cold! Maybe it’s just me, but being freezing cold with nothing to do about it was ridiculously aggravating. It helped to imagine this, though:

Oh, Vince, you do go on

4. Here Comes Baby!

Nothing can really prepare you for the big moment. Most of the things they don’t tell you about c-sections are negative, but this is a rare positive surprise! I cannot put into words the mixture of intense emotions that surged through me when the big moment arrived. I was extremely relieved he was healthy, so excited to meet the little thing that was once smaller than a blueberry inside me, in awe of the fragility of this new life, nervous that I wasn’t going to be a good enough mom, and just blown away that this HUMAN came out of ME!

It really is!

3. Alone Again, Naturally

I may be in my late twenties, but I love me some melancholy 70s music. As Gilbert O’Sullivan so poignantly states, “Reality came around.  And without so much as a mere touch, cut me into little pieces.” Except I was cut just once, maybe six inches wide. Boy, did reality come around, though. After the awesome moment that you hear your baby’s first cry (of many), you are on your own again. I wanted to do the “natural” c-section thing, but with my severe shaking and unstoppable, frequent vomiting, they couldn’t bring the baby near me. So off he was carted, my husband went with him, and I was alone on the table getting stitched up. I guess I should have figured this, but the “finishing up” portion of the c-section took about forty-five minutes and was much longer compared to the “pre-baby coming out” part. Emotions were running high, I just wanted to be with my baby, but this is one you just have to endure.

OH THE FEELS

2. EXIT ONLY!

Warning: TMI ahead.

Pee-pee holes, as adults often call them, are meant for one thing and one thing only: to let urine out of your body. In other words, it is an exit only. This is why I hate catheters and do not like when grumpy nurses with cold hands wake me up and fiddle with a tube in my sensitive area.

Excuse me?!

Oh you thought the c-section was the end of people all up in your nether regions? Haha, nope! You will be woken up just as much, if not more, by the hospital staff than your own baby to check out your “stuff.” P.S. you don’t get to wear underwear for a while. You’ll lay on a doggy pee-pad while Carrie-sized amounts of blood just pour out for way too long. I thought that since it wasn’t a vaginal birth, it was normal down there. False. You’ve just had a baby taken out of you (a significant trauma) and the blood has to go somewhere. So expect your “exits” to still be examined for a while after the surgery.

1. You Want Me to Do WHA?

Hey you know how you just had a baby and you’re super achy but have somehow managed to muster what little strength you have to care for your baby? Well now they want you to freaking WALK. The audacity! They stress the importance of getting vertical and walking, and I get it, but does it have to be so soon?

Not an option, bro

Apparently, yes. You really do need to get up and walk. In the end, walking when I did – and doing it often – significantly helped with the healing process and getting my bowels moving. Trust me, do not underestimate the value of getting your tummy factory up and running again!

 

So there you have it: ten things that you probably didn’t know about the whole c-section process. Some parts of the experience are super unpleasant, some are just awkward, but in the end you get an incredible reward: your very own baby! Its resale value is slightly less now that it’s out of the original packaging, though. (GET IT?) But for real, I’d do it all again (maybe take a few more stool softeners) because nothing compares to the moment when you look into your baby’s eyes for the first time. Oh, geesh, where’s my Kleenex?