Is A Chronic Illnesses Really A Secret Superpower?

Have you ever had a “light bulb moment” about an issue that completely changed your perspective? I’ve been struggling with the challenges my chronic illnesses present for years, but motherhood was a curveball I didn’t expect. But was I really as unprepared as I thought?

Light bulb moment!

What if…?

 

Today I had the privilege of sharing my story of chronic illness, motherhood, and attempting to achieve superhero status. Head on over to Mom Babble to check out the post and let me know what your “light bulb moment” was!

How to Survive a Four Hour Drive with a Toddler

Prior to becoming a mother, I told myself I wouldn’t be caught dead driving long distances with a child. I figured I could put off accepting any kind of out-of-town social event until the kid was say, oh I don’t know – how old are they when they stop misbehaving? Oh right. Never. My genius pre-motherhood plan lasted less than two years. Last week my husband, eighteen month old son, and I set off on a cross-state drive for a wedding and I’ve lived to tell about it!

If you want to survive a long, family car ride without needing to call someone for bail money (presumably for assaulting whoever woke your sleeping child), then read on:

1. Expect the Unexpected

Before our trip could even get off to a proper start, I somehow managed to dislodge the right side of my front bumper. I’m talented like that. I’m like ninety percent sure it wasn’t my fault, but let’s not squabble over details. There we were: in the predawn hours, dragging rubber and plastic down the highway, praying to the travel gods the baby would stay asleep while anxiously looking for a safe place to pull off .

This looks safe, right, Honey?

“This looks safe, right, Honey?”

Despite neatly packing snacks, quietly transferring my sleeping son from the crib to the car, and carefully hanging fancy clothes without wrinkling them, I was not prepared for this. So what do you do when the proverbial fecal matter hits the fan? Aside from performing a ritual goat sacrifice, I strongly suggest you embrace the chaos. The more you try to fight against the craziness, the less calm you (and everyone around you) will be. Just try to roll with it – even if you’re screaming internally.

Just breathe in and out.

Just breathe in and out.

2. Breaks. SO. MANY. BREAKS.

Keeping in theme with the previous rule, you’ll need to adopt the mantra “F*** The Schedule!” When the mini vehicular catastrophe was finally remedied (thank you, zip ties!), we were a solid two hours behind schedule. I thought to myself, “That’s okay. We factored in a bonus hour for breaks, so we’re really only one hour behind. I can make that up with clever driving and no breaks. It’ll be fine!” Oh how innocent I was.

So young, so full of hope I was.

So young, so full of hope I was.

A funny thing happens when you try to drive long stretches without a break. Perhaps “funny” isn’t the right word. Pee. Yup that’s the word: PEE. Pee happens when you don’t take breaks and you have a toddler with the bladder the size of a thimble. Unfortunately my seizures left me with the inability to smell (True story! Ask me about it some time) which meant I was blissfully unaware of the urine soaked car seat and horrifyingly wet toddler until it was too late. Do yourself (and your upholstery) a favor, and take as many breaks as necessary. Those with functioning olfactory receptors will thank you.

WHY, GOD? WHY?!?!

WHY, GOD? WHY?!?!

 3. Baby = “Get Out of Jail Free” Card

Okay, this one may sound like I’m a horrible person – and maybe I am, who cares? – but one of the perks to having a baby is that it is the best excuse you’ll ever have! I’m not recommending you lie and say your baby is sick to get out of a party because, ya know, karma. But if you have a legit situation which has created some negative outcome, don’t be afraid to blame your exit strategy on the baby. Just don’t get drunk with power.

drunk with power highlander

It’s deceptively easy to use the excuse too much.

The final key to being able to survive a long drive with your toddler is to not worry about what others may think. Merely showing up in one piece should be accomplishment enough, in my opinion. Yeah, we were late and probably smelled of baby pee, but we MADE IT! The ride back? Now that’s an entirely different story…

WebMD Gal Gone Wild!

I am beyond delighted to have the uproarious and talented Stephanie D. Lewis of Once Upon Your Prime as today’s guest author. Her post deals with a subject many chronically ill people deal with on a regular basis: the dangers of searching your symptoms on the internet. Prepare for a hilarious parody of the physician-kind and make sure to check out her bio at the end!

WARNING: If you have any post-baby bladder problems, grab a pad because this post can cause you to laugh hard enough that you may suffer a urinary accident!

The Doctor Is In But I’m Out . . . Of My Mind!

All my adult life I have dealt with a debilitating disorder – – it’s called, “Tell & Show Syndrome.” Someone will TELL me about a new rare disease and WHAM! – – all the signs of it SHOW up throughout my body.

new-girl-might-be-dying-gif

To say I am highly suggestible is an understatement. I can read an article in a woman’s magazine entitled, “10 Symptoms You’re Too Bashful To Discuss With Your Male Doctor (But You Should Before It’s Too Late!)” ~ Immediately I have all 10 plus 4 bonus ones the author wasn’t imaginative enough to think of. Fear and panic overtakes all my shyness. Gimme that doctor right this minute! I might even consider going to second base with him for a second opinion.

webmd-whats-wrong-with-me-kristen-wiig-gif

I do have a regular physician I call several times a week, and I’m sure the nurses give him messages that go like this – –

“That hypochondriac lady (who resembles a highly fatigued Amy Winehouse, minus the tattoos) is on the phone again. Today she’s claiming that when she walks, it feels like thumbtacks/paperclips are poking her feet. Should we advise her to proceed directly to the local office supply store?”

wont respond arrested development

Feeling rather unwelcomed there, I go to my beloved online medical information mecca – – “The Web MD.”

First of all, it never dawns on me that the word “Web” in their name is a subtle symbolic tip-off that I should stay far, far away. Let’s think about this, shall we? Who has webbed feet? Ducks! And what do ducks say? “QUACK!” Hello??

But this doesn’t deter me from typing, “thumbtacks sticking feet” into the symptom-checker box and obtaining a shocking diagnosis. Four shocking diagnoses, actually. One relates to my Brain, one relates to my Heart, another to my Lungs, and the final one to my Stomach. Interestingly, none of the diseases have anything to do with Feet. And all are extremely fatal.

dying ferris bueller

Having gotten C +’s in my Deductive Reasoning classes in high school, I know it isn’t possible that I would be afflicted with ALL four of these maladies. That’s only logical, right? So which one can I safely eliminate?

Next I do what I always do at 2:00 in the morning – – I log onto a hospital patient message board and post about my situation, asking if someone “out there” has ever experienced a symptom like this but everything turned out to be completely fine? I stare for hours at my computer screen waiting for anyone to type a reassuring response. And then it dawns on me. .

The reason nobody can answer my question. . .

Everyone who had this same problem has ALREADY died.

miss j scared

Should I start writing my Obituary or my Last Will and Testament first? And what about guardians for my precious kids! Why, oh why couldn’t my ex-husband and I ever agree on whom to name as caretakers in the event of our deaths?? His sister puts ketchup on eggs, doesn’t believe in orthodontia, and Danielle Steele is her favorite author. So what? I shoulda let all that go.

“Please God,” I bargain, “I know last week I hated this world and said I’d rather be dead than go to the Department of Motor Vehicles to renew my expired driver’s license. But I promise to find gratitude and get a new lease on life – – just please don’t let me expire!”

please leslie knope

There’s nothing left to do. Except find a brand new doctor who hasn’t heard about my “Boy Who Cried Wolf” past. My previous doctors have issued, “WARNING: Circus Side Show Freak” bulletins about me to the medical community at large, so this will be no easy task.

I finally show up on the doorstep of an office in a faraway town. I watch as their “The Doctor is in” sign lights up. I’ve always believed first impressions are important so here is how I fill out the paperwork on the clipboard.

 New Patient Form:

NAME: (circle one) Miss/Mrs./Ms.    I’m divorced so technically it’s “Ms.” But please call me “Miss” as in “Little Miss Menopause.” Although Mr. may be a distinct possibility these days – – can you check my testosterone level?      

AGE:  I just caught a glimpse of you at the reception desk….I could be your mother’s big sister.

REASON FOR TODAY’S VISIT?   Look at me! Isn’t it obvious? I just need the Dr. to confirm how much time I have.

WEIGHT:  Who cares at this point? Just order me a size 8 burial gown. And yes, I’m banking on the fact that loss of appetite will kick in soon with this particular disease.

PROFESSION:  Writer (Pssssst! Hot tip: Publish this New Patient form. Everyone knows a deceased author’s last work commands a high price.)

EVER SKIPPED A PERIOD?  Yes, but I’m working diligently on eliminating my run-on sentences.

WHOM CAN WE THANK FOR REFERRING YOU?  You mean blame?

PERSON TO CALL IN EMERGENCY: Um…my two ex-husbands will deny knowing me. Let’s see….My kids will just ask, “What’s for dinner?” Oh, don’t call the neighbors, they’ll tell you I should have died 7 times by now.  Hmmm, I think you might call Mabel, my hairdresser. But when you say, “Died” – – you better spell it. She’ll think you mean Clairol Nice n’ Easy Deep Burgundy Brown.

I’m interrupted by the Doctor, who calls me in. He listens to my heart and pronounces it steady and strong. I resist the urge to ask when he’s last had his stethoscope calibrated. I describe how I feel (this time likening it to my feet being stabbed with steak knives) but he cuts me off before I can get to the Web MD part.

DR: Have you ever heard of Transient Paresthesia?

ME: Oh no, Doctor! Not that! I don’t even ride a train or bus!

DR: Not “Transit.” Transient, meaning Short-Lived.

ME: Good Lord, you mean I’m gonna go even quicker than I thought?

DR: Where ya headed to?

ME: Aren’t I dying?

DR: We all are. But I think you’re gonna survive this one. Transient Paresthesia = Limbs falling asleep.

As I depart, I glance over my shoulder to see him sketching a big-haired woman with the caption, “BEWARE OF CREATIVE BLOGGER WITH TOO MUCH TIME ON HER HANDS….She needs to be cut off ASAP!!” He then posts it on the WEB MD website!

gaga yes i'm judging you


 About the Guest Author:

Stephanie D. Lewis is a regular contributor for The Huffington Post and her work has been featured on Scary Mommy, The Mid, XO Jane, and Bluntmoms. She pens a humor blog called, “Once Upon Your Prime” and her novel, “Lullabies & Alibis” is available on Amazon. A single mother of six, she declines a full-time nanny/housekeeper but needs a live-in psychiatrist. Follow her on Twitter @missmenopause

 

Time Out For Mommy!

So far this summer has been off to a roller-coaster of a start! We have grieved the loss of a loved one, celebrated the union of two wonderful people, and were surprised by the early arrival of my best friend’s daughter (to whom I have the honor of being godmother). With all the ups and downs, I’ve decided to take a brief break from the interwebs and invite some of the best and funniest writers I know to help me out in the mean time!

help

The lovely Bianca Jamotte was kind enough to share one of her hilarious pieces from MomCo with you today! Make sure to check out her bio below and let us know what you thought of this real momma’s confession!

Real Mommy Confessions: Finding the Comedy in the Chaos

I have spent much of my life learning to tame my temper. I take after my hotheaded French father, lots of opinions and volume. I’ve wanted to be a mom for as long as I can remember and wished to be as calm and serene as my mom always seemed to be. By the time my husband and I started talking about having babies, I was ready! I had become the woman I wanted to be. I had learned how to express myself without yelling, how to be opinionated without being abrasive. I was going to be a wonderful, loving, gentle, mild-tempered Momma. And I was. For 15 months. Then we had my son and my daughter became a toddler.

What has saved me from losing my mind completely is finally getting honest. I am not calm or serene. My life isn’t always pretty. I tried to make it look that way for a long time, only sharing filtered pictures of smiling my babies on Facebook. Posting status updates about how #blessed I am, but the truth is my car is a mess and everything and everyone is always sticky. Some days I just want to crawl in a ball and cry (and sometimes I do,) but most of the time I try to laugh. I post pictures of my children throwing temper tantrums, and status updates of the hilariously creepy things my daughter says. I make it a point to find the humor in the chaos, and only lose my temper when I truly can’t find anything funny in the situation. I laugh, one of my friends drinks wine, another does cross fit and the mom who submitted this confession, believes in timeouts.

About the Guest Author:

Bianca Jamotte is a Mom, Actress, Award-winning Filmmaker as well as Brooklyn Business Owner and Creator of the independent Original Series, Real Mommy Confessions. Business owners, Bianca and her Husband (who also proudly serves as a FDNY), own and operate the delectable specialty Mac and Cheese Restaurant, Brooklyn MAC, as well as the award-winning Coffee Shop, Cup, which was given the title of ‘Best Espresso’ in Greenpoint. Her most exciting credential for which she is most proud, however, is her job as Mom, which brings on a daily host of challenges and accomplishments, often simultaneously. These include successfully keeping her 2-year old from nosediving off the sofa as well as negotiating with her willful 3.5-year old.

You can find her on Facebook, Twitter, and her site, Real Mommy Confessions.