Is A Chronic Illnesses Really A Secret Superpower?

Have you ever had a “light bulb moment” about an issue that completely changed your perspective? I’ve been struggling with the challenges my chronic illnesses present for years, but motherhood was a curveball I didn’t expect. But was I really as unprepared as I thought?

Light bulb moment!

What if…?

 

Today I had the privilege of sharing my story of chronic illness, motherhood, and attempting to achieve superhero status. Head on over to Mom Babble to check out the post and let me know what your “light bulb moment” was!

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5 Confessions Of A Chronically-Ill New Mom

With the past few blog posts dealing with heavy topics such as inability to breastfeed and body image issues, I figured we could do with something a little lighter.  So here are some of my embarrassing, honest, awkward, and funny confessions as a new mom dealing with chronic illnesses!

1. Eau de What??

Some of you may know this about me, but I can’t smell (thanks, seizures!).  This has its pros and cons.  Pro: I can walk by a horrifically awful dumpster and not have any reaction.  Con: I can walk around for the better part of a day with baby puke on the back of my shirt and not realize it.  And if you’re thinking that example sounds oddly detailed, you’re right, because it actually happened.  Unfortunately I can’t always blame my inability to smell.  Sometimes I am fully aware of the pureed sweet potato on the front of my shirt, but I am just too darned busy to change.

Confession: Some days I may smell like a combination of spit up, poop, and old food. I don’t care. It happens.

I'm insecure, so this is what I imagine people are thinking when they're around me

I’m insecure, so this is what I imagine people are thinking when they’re around me

2. Nature’s Napkin

You remember when you were a mom-to-be and you could spend hours on Pintrest looking up cute little DIY projects and clever hacks for life with baby?  Oh, it all seemed so possible and so adorable!  Those were the days.  And then your baby sneezes with reckless abandon directly into your mouth.  Snot happens.  As was mentioned in the above confession, I am often covered in so many fluids, I would make a hotel room on CSI look clean.

Confession: When my son is sick, and he thinks my shirt is a tissue, I oblige because I’ll do anything to make him feel better.

Sneeze away, baby

Sneeze away, baby

3. Back Burner Syndrome

Let’s face it.  When you’re a new mom, you’ve got your hands full.  Slowly but surely, more and more things start to be placed on the back burner.  It starts with not sorting the mail on a daily basis, then leaving clean laundry in the dryer, and finally you’re just lucky if you can remember where you put something.  Some of that I can blame on the “Lupus Fog” or  my memory issues (thanks again, seizures!), and sometimes I’m just prioritizing.  Surprisingly, my house actually stays pretty clean, but I guess I just feel guilty about not being able to “do it all.”

Confession: Laundry and dishes can wait.  My baby’s needs cannot.

Dust it off, boo

Dust it off, boo

2. I’ll Tell You What I Want, What I Really Really Want!

While the Spice Girls may have had more R-rated things in mind, what I really really want is much more G-rated.  I just want to be able to go to the friggin’ bathroom for like more than five seconds.  And I know I am not alone in this, so don’t even try to play like you wouldn’t ugly-cry tears of joy if someone said you could have a luxuriously uninterrupted, hot shower.

Confession: I love every second I get to spend with my baby, but there is only so much my bladder can hold.

How I feel when I finally et to go to the bathroom

How I feel when I finally get to go to the bathroom

1. Silver Lining

Oh you know me, always looking for the silver lining.  This time I really have found one!  I used to get bummed (and borderline offended) when people would assume that because I don’t look my age and have crazy hair that I must be a teen mom.  I even had one older lady behind me in the check-out line make a snide remark to her friend, “It looks like babies having babies.”  To which her friend replied, “I’ll bet you it wasn’t even planned.”  Perhaps their hearing aids weren’t properly adjusted and they thought they were being quiet?  But then I realized, I hadn’t been a teen in almost a decade!  Those crones’ comments were more of a self-esteem boost than getting carded at a restaurant 😉

Confession: When rude people think I’m a “teen mom” they’re actually just telling me I look great for my age!  Thanks, haters!

AND I'M OUT!!!

AND I’M OUT!!!

5 Lies You’re Told

This is going to be a fun one!  Not only are we going to discuss the lies you’re told about being pregnant, but also about the lies dealing with illness.  Even before I was pregnant, there were all these misconceptions out there about how a “sickie” is supposed to feel and act and live.  Now that I’m with child, it seems like I’m fighting two different yet equally prejudicial battles.  So here are some things I’ve been told that have turned out to be completely false.

5. You Can (and should) Have it All

Now I’m just as much a feminist as the next gal.  I even hyphenated my last name when I got married!  If that’s not proof, then I don’t know what is 😉  But seriously, there’s this unreal standard that women are held to in society.  You’re told you should be able to juggle your personal and professional life – all while staying in perfect shape, of course!

Me thinks Photoshop has been used

Me thinks Photoshop has been used…

There is absolutely no shame in picking your own path, even if you feel like you’re admitting defeat.  The moment I realized it was okay for me to take time off work to focus on the health of me and my baby, I felt amazingly relieved.  Don’t fall prey to the lie that you are supposed to be some kind of “Wonder Woman.”  You’re growing a human inside of you!  How much more Wondrous can you get?

Real women. Real bodies.

Real women. Real bodies.

4. It’s Just in Your Head

Pre-pregnancy, when I was searching desperately for a diagnosis, I was told by many doctors and specialists that the joint pain, fatigue, and subsequent anxiety was all in my head.  I had never felt more confused, full of self-doubt, and even angry than when I started to let those doctors get to me.

NO IT'S NOT!

NO IT’S NOT!

Thank God (after quite a few years) I found a doctor that listened to and believed me and was able to give me my diagnosis.  Then, as a high-risk pregnant woman, I’ve also been judged by non-high-risk women telling me that I was just exaggerating my symptoms.  The insulting part was when they would tell me their “real symptoms” as if a) mine weren’t real and b) that their symptoms were worse than mine.  Honey, I would take your puffy ankles over my hip dislocation any day!  So just tune out the negative people in your life and don’t back down with your health professionals if/when they don’t take you seriously.

3. It’s All About the Birth

This was a new one for me.  Out of all the weird comments I was expecting to get, this was kind of a curveball.  While it’s true that “It’ll all be worth it in the end,” some people take it to the nth degree.  Some people made it sound as if the entire process of pregnancy is only about the end result.  So anytime I would be talking about a speedbump we had encountered in the pregnancy, the validity of my concern was immediately thrown out the window, because I should just “focus on the main event.”

The indignation of it all!

The indignation of it all!

But the entire nine months are important in their own right.  For instance, my husband and I have never felt closer than through these months of pregnancy.  I’ve gained a new perspective on motherhood from many late-night phone calls and talks with my mother and mother-in-law.  I’ve made deeper layers of friendship with the women in my life that are moms or moms-to-be.  I’ve even formed bonds with people on internet support groups where we can all rally around each other and our shared health issues. There are so many wonderful experiences I’ve gained through this pregnancy, that I would hate to think what would have happened if I only let myself focus on the end result of birth.  Live in the now and appreciate the process, warts and all!

This applies to so much in life

This applies to so much in life

2. Just Push Through It

Whether you are pregnant, have a chronic illness, or a combination of the two, you have had days where the word “pain” is an understatement.  For the average person, pain is your body’s way of saying something is wrong, but often we are told that as high-risk pregnant women, the pain is just something we will need to learn to live with.  While there are some things that I’ve gotten used to with my Lupus or EDS, I know from experience that not all pain is the same.  Listen to your body.

Some days are a 10

Some days are an 11

There is also this misconception that asking for help = weakness.  Admitting that your body can no longer do the things it used to isn’t being weak, it’s being honest!  To “push through it” and “suck it up” is not only delusional, but potentially harmful to both you and your baby.  So, no, don’t stress out over every little twinge of pain, but also don’t ignore the signals your body sends you.

1. You’ll Get That “Pregnancy Glow”

Maybe this one is just me, but one of the things I always heard about was how women will get this “glow” during pregnancy.  I imagined that when my pregnancy was in full swing, I’d have this cute little bump, radiant skin, and fabulous hair.  Well with a little help from MasterCuts, my hair is pretty fabulous, but besides that I don’t feel like I’m glow-y.

SHE'S SO RADIANT!

SHE’S SO DARN RADIANT!

And I’ve realized that’s okay.  At this point, I’m actually just stoked that my baby is staying healthy and is growing how he’s supposed to be.  Us high-risk ladies find happiness in the little things “normal” moms-to-be take for granted.  While some of my pregnant friends were talking about how their skin cleared up and their hair and nails seemed stronger than ever, I was over here being like “Hey I had a brief moment where my joints didn’t feel like they were on fire!  It’s gonna be a good day!”  It’s also good to remember that most celebs (and even some of our friends) just happen to have the extra time, money, and stylists to make it possible to look like an actual human in the morning.  For me, not so much.

I ain't even playin right now!

I ain’t even playin right now!

So in the end, no two pregnancies are exactly alike and we shouldn’t expect ours to hold up to the magical standards portrayed in movies and on magazine covers.  Your pregnancy is your pregnancy.  What is normal for you won’t necessarily be normal for everyone else.  This is basically how life goes, by the way.  The quicker we can acknowledge and accept that we make our own definition of what’s beautiful, the better.  Now I love the bags under my eyes, sallow skin, and swollen joints.  You know why?  Because it means the little life inside of me is still alive and kicking and my body is so busy keeping him healthy, it doesn’t have time to worry about looking “fresh.”  Flip the script and embrace it!